Today was my monthly Benlysta infusion day. Things started off rough, as my blood pressure was running 142/100. I don't know why. I'm on two blood pressure medications, plus I took a Xanax before I left my house. Plus, I've lost more weight. Anyway, after my blood pressure came down slightly, they decided to go ahead and start my infusion. It took two sticks to get the IV in. I've been sick lately, so I'm probably dehydrated.
While I'm there, my rheumatologist always comes in to see me. I started off by telling him that I've been sick for the last three weeks with a kidney infection, mouth ulcers, body aches and overall fatigue. I told him I started taking 5mg of prednisone as soon as the mouth ulcers started. It's been a rough three weeks. My doctor told me he wants me to stop my methotrexate injections for awhile. He said that hopefully that may help with some of my symptoms. I hope it works, because I've been off it before and I got worse. Only time will tell. He also wants me to continue taking the 5mg of prednisone for another week then stop, and also do some light exercise, like walk around the block everyday. I told him I would try. I also got my flu shot while there. Ouch!
I scheduled my next infusion and doctor appointment for November 14th. A few days before my appointment, I have to go get my lab work done, so the doctor will have the results by the time I come in.
Well, that's it. I'm home now and resting, as I'm feeling dizzy and have a fever coming on. Planning on resting till its time to take Anthony to football practice.